a good week (and a VERY long read)

This week has been a good one.
A good week for both of my little kiddos.

For the last year and a half of his 2 year life, Jax has STRUGGLED with his ears (if you don't count him failing his hearing test at 3 days old).  I've had so many thoughts about what the deal was.  At one point, I even was convinced that this little guy was deaf.  His language development was struggling, ear infections were endless and thus, he got tubes.

I thought tubes were going to solve our issues 100%.  I thought he was going to be singing the alphabet and reciting poetry 24 hours after the tubes were placed.  I was wrong.  While ear infections were more controlled (not totally gone though), those stupid tubes kept getting plugged.  They are suppose to drain when they get infected.  Of course, his didn't.

So, he had more hearing tests.  He failed some.  He passed some.  Some were inconclusive.  I was starting to really get frustrated with his ears and his lack of talking.

Well, this week we have had a breakthrough!!!  It has been such a wonderful week for me.  Jax, of course, got an ear infection.  We used these prescription  ear drops, and HIS EARS DRAINED.  They drained and drained and drained.  They drained for days (and are actually still draining today).  It was like a years worth of infection and shall I say - crap - came gushing out.

So, what was the result of all this?  Babbling like nobody's business.  Chase and I were talking about his little ears and I was like, "Is this seriously the same kid as we had last week?"  He is talking so much.  It is insane.  I am SO SO SO happy for his draining ears!!  When you talk to him, his face and eyes are different now.  It is like he now knows you are talking to him.  I could not be happier!!!!!!

If I have had to worry about Jax so much why in the world would Ben be worry free?  My sweet, little, squishy Ben has really made me wish I went to medical school before I had babies!!

At about 2 months old Ben stopped pooing.  He would grunt like he was trying, but no luck.  He had the gassiest belly ever, and he was SO uncomfortable.  He would go over a week before going to the bathroom.  I talked to my doctor who told me some babies do that and it is normal.  I knew this was not normal.   

So, for the next 4 months while we were waiting to get into Primary Children's gastroenterologist, I would put a rectal thermometer in little Ben EVERY. SINGLE. DAY.  This was the only way he would go to the bathroom.  How fun for me.  Poor little guy.

We finally got in to Primary Children's GI Clinic - it takes like 3-4 months to get an appointment!!!  Dr. Pohl, who I LOVED, checked Ben out.  Everything looked fine.  He had to get a barium enema so that we could have a little x-ray like picture of his insides.  Once again, everything looked fine.  So, we started him on some nasty, oily medicine, and I was told to eat zero milk products, which I hated (and sometimes cheated and snuck chocolate chips).

The medicine worked for about 3 weeks.  Then, Ben stopped pooing again.  Finally, Dr. Whiting (who I also LOVE) finally figured out the problem.  The solution was SIMPLE.  Ben's intestines are a little more angular than most other babies.  (Babies grow out of this as their bodies grow.)  So, it is hard to push stuff out.  

All this little boy needed was MiraLax.  He has been getting a healthy dose mixed in with baby food for the last 2 months.  It has changed his (and my) life.  All of my stress and doctor after doctor, and all he needed was MiraLax.

Finally, this week I have mastered his dosage.  Yes, it has taken me 2 months.  It is pretty hard to figure out how much someone needs.  Obviously height and weight play a big role, but so does individual severity.  Ben was blowing out of everything for a while - too much.  Then, he was having days between bowel movements - too little.  Now, he is pretty much going to the bathroom every single day - -and sometimes twice on a good day.



sarah said...

I seriously wish I had my degree in medicine. What would I give to just get my hands on one of those little things they look in their ears with? You've gotta love the Dr. appointments where you pay to have them glance in their ear for two seconds and say, nope- not an ear infection. How hard can that be? Seriously?

I'm so glad things are sorting themselves out with your cute boys! I can only imagine the stress it's put on you...hopefully now you can relax. Go eat some chocolate chips! You've earned them!

Lyssa said...

Oh Goldie! I'm sorry! That sounds like a really hard couple of years for both you and your boys. I'm so glad that answers have finally been found. Isn't it so nice when things finally work out?!
And it's always the simple things that are the solutions! A friend of mine who is in medical school has those ear instruments and you know what he looks for for an ear infection? If it's RED in the ear canal, then it's an infection...how easy?!
With all that we go through with kids, we should be nurse certified anyways!

Esther Noelle said...

Wow! So happy for you! those are like life changing solutions - so glad you got that stuff figured out! Hurray!

Lou said...

Funny timing. I'm going in today to get Ty's ears checked. Never crossed this road before, but from the sounds of it, maybe I'll just stay home and keep my money in my pocket.

Glad to see things are on the up and up.

How's your training...

Jeff and Brandi said...

I so wish I had known about these pooping issues and I would have suggested Miralax from the beginning. Dylan has been on it his whole life and it works miracles! I'm glad things are working out for you!!!! Still waiting for my day! HAHA

Josie said...

Oh my goodness!!!! My little man has had the same problem... We actually live off MiraLAX it has to be the #1 miracle worker there is. Sorry you had to go through all that to figure it out, it took us a long time too, max is 2 1/2 and we just got him regulated too. Funny thing is it works on adults too:)

Tyler + Lauren Clyde said...

You have had it rough... but so have your babies! It it ths most stressful thing in the world when something is wrong with your baby & you haven't a clue what to so about it! Luckily for me I have older sisters with lots of mommy experiences, I just call one of them ;o) I'm plad things are looking good for them know... clear ears, clear intestinal tracts, & all!! You have the sweetest little boys. They are both so incredibly cute.